Latest Episodes

August 7, 2024

#140 Post-Traumatic Epilepsy: What We Know and Where the Research is Going

Guest: Dr. Elisa Zanier

Dr. Elisa Zanier of the Mario Negri Institute in Milan, Italy discusses the current state of research into Post-Traumatic Epilepsy (PTE).

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FamilyInfantile SpasmsTypes of Epilepsy
July 7, 2021

#69 Infantile Spasms: Awareness, Observation, and Intervention

Guest: Lissy Griffin

A mother’s awareness of infantile spasms and persistence contributes to a positive outcome for her daughter.

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AdvocacyLiving with Epilepsy
June 23, 2021

#68 Living and Thriving with Epilepsy

Guest: Jon Sadler

Epilepsy patient, counselor, and author Jon Sadler discusses living with epilepsy for more than 50 years and how his experiences have shaped his perspective on epilepsy and informed his efforts to become a counselor and help fellow patients and caregivers.

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AdvocacyFamily
June 9, 2021

#67 After SUDEP: A Journey of Grief and Hope

Guest: Geoff Applegate

After the loss of his fiancé to SUDEP, Geoff Applegate a single-parent was left coping with his own grief while also learning how to help his young son understand the loss of his mother.

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AdvocacyFamily
May 26, 2021

#66 Epilepsy Education and Seizure Safety in Schools

Guest: Colleen Quinn & Paul St. Pierre

When Paul St. Pierre encountered a lack of understanding of epilepsy at his school, he and his mother, Colleen, took action to ensure that all schools in the state of New Jersey were educated on epilepsy and seizure safety.

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AdvocacyLiving with Epilepsy
May 12, 2021

#65 Finding Balance: Managing Epilepsy and Work

Guest: Lauren Panco

For many people, their 20’s are an exciting time of personal and professional growth.  It may be the first time you’re on your own, beginning a career and making new friends. Your world is a mix of social activities and work responsibilities. You are young, ambitious, and in the prime of your life.  Then, out of nowhere, you have a seizure, and find yourself navigating a new world of doctors, neurologists, tests, and medications in an effort to balance epilepsy with your busy life. https://youtu.be/IT2x2GbL2Yk Lauren Panco was 26 years old, in the midst of a promising career with a fast-growing company, engaged to be married, and enjoying a busy professional and social lifestyle when she suddenly suffered a seizure. On this week’s Seizing Life®, Lauren, now 32, discusses the disturbing initial diagnosis she received, her concerns about the impact of epilepsy on her career, and how she has navigated workplace challenges with a determination not to allow epilepsy to define her. Lauren also offers advice for communicating with employers and co-workers and making the decision to have a baby as a woman with epilepsy.

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AdvocacyHealthcare
April 28, 2021

#64 A Mother’s Determination: Advocating for Your Child’s Epilepsy Care

Guest: Elissa Moore

Elissa Moore recounts her son Cormac’s journey to a diagnosis and details the challenges they encountered in pursuit of the right treatment for his epilepsy.

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FamilyLiving with Epilepsy
April 14, 2021

#63 Raising A Child with Both Autism and Epilepsy

Guest: Liane Kupferberg Carter

Author and journalist Liane Kupferberg Carter speaks to us about her journey raising a son with a dual diagnosis of autism and epilepsy.

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FamilyLiving with Epilepsy
March 31, 2021

#62 Growing Up Alongside a Sibling with Epilepsy

Guest: Emma Cardwell & Nathan Bliss

College students Emma Cardwell and Nathan Bliss discuss their experiences growing up with a sibling who has epilepsy.

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FamilyLiving with Epilepsy
March 17, 2021

#61 Community, Fatherhood, and Seizures

Guest: Brittany and Alek Stewart

Alek Stewart has lived with seizures since he was a teenager. But a sudden and dramatic increase in frequency caused Alek and his wife Brittany to make adjustments to their daily lives, and inspired them to create a community, build epilepsy awareness, and support scientific research.

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