Seizing Life

This week on Seizing Life® we speak with two rare epilepsy organizations, The KCNT1 Epilepsy Foundation and The Cute Syndrome Foundation, about community, awareness, and advancing research.

This week on Seizing Life® Annette Adkins discusses the impacts of intractable epilepsy on her life, and how it led her to a regenerative brain cell clinical trial that has brought her a year of seizure freedom.

This week on Seizing Life® epilepsy researcher Dr. Chris Dulla provides information about infantile spasms, from detection and diagnosis to current research and future improvements in treatment.

This week on Seizing Life® Dr. Elizabeth Gerard discusses concerns specific to women living with epilepsy. From puberty to menstruation, contraception, pregnancy, and menopause, we explore managing epilepsy through all stages of a woman’s life.

This week on Seizing Life® Peter Burpee shares his experiences with absence and tonic clonic seizures and explains why he’s running for Team CURE Epilepsy in the upcoming NYC Marathon.

This week on Seizing Life® Dr. Richard Goldstein, Associate Professor of Pediatrics at Harvard Medical School, discusses his research into both Sudden Unexpected Death in Pediatrics (SUDP) and the grieving process of bereaved parents.

This week on Seizing Life® Kate Kostolansky shares her daughter’s infantile spasms diagnosis and treatment journey, and explains how these experiences inspired a children’s book to help newly-diagnosed families.

This week on Seizing Life® Barbara D’Amora tells us about her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal.

This week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of generalized epilepsy.